Social Media & Academic Oncology: Opportunities for Radiation Oncologists
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This document discusses the challenges and opportunities of social media in academic oncology. It defines social media and outlines its rapid adoption and global reach. Both risks and benefits are discussed in relation to clinical practice and academic medicine. Social media is changing how research is conducted through opportunities for collaboration, crowdsourcing, and publishing. It also impacts recruitment, education, mentoring, and reputation. While social media brings new ethical considerations, it provides a way for oncology to engage the public and conduct research in innovative ways.
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Social Media & Academic Oncology: Opportunities for Radiation Oncologists
- 1. Social Media & Academic Oncology Challenges and Opportunities Matthew Katz, MD December 2014
- 2. Conflict of Interest Partner, Radiation Oncology Associates PA Medical Director of Radiation Medicine, Lowell General Hospital External advisor, Mayo Clinic Center for Social Media Founder, nonprofit blog Radiation Nation
- 3. Overview Social Media Definition Scope of Use Risks & Benefits Clinical Practice Academic Medicine Impact on Research Ethical Practical Opportunities in Radiation Oncology
- 4. Definition “Social media are web-based tools for interaction that, in addition to conversation, allow users to share content such as photos, videos, and links to resources” -- Meredith Gould, The Social Media Gospel
- 5. Social Media Global reach Easy access Little technical expertise needed to use Immediate impact Dynamic content Wikipedia, http://bit.ly/mZcwaH
- 6. Most active U.S. social websites
- 7. Data analytics firms track us, including NPI numbers Creation Pinpoint, http://bit.ly/1hU6Kqd
- 8. Rapid Adoption in U.S. In the US: 35% have searched for a medical condition online 80% start with a search engine Pew Internet Pew Internet http://bit.ly/1moDRZ4 http://bit.ly/1gXxHv7 N = 1,445, Sept. 2013 42% of adults are using social networks N=3,014, Sept. 2012
- 10. Risks in Clinical Practice Patients/Caregivers Misinformation Loss of privacy Psychologic amplification Professionals Professional harm Patient harm Psychological harm
- 11. Benefits in Clinical Practice Patients/Caregivers Support Education Collaboration Advocacy Professionals Coordinate Care Collaboration Networking Education Career Opportunity Reputation Management
- 12. Social Media and Academic Medicine Recruitment, Education & Training Research Collaboration Crowdsourcing Funding Publication Academic Promotion Reputation
- 13. Recruitment
- 14. Who still buys textbooks?
- 15. Mentoring
- 16. Changing Dynamics of Mentorship Geography less important ? Mentor at another institution ? Need to be in academics
- 19. #bcsm – Breast Cancer & Social Media Weekly Twitter chats start July 4, 2011 Organized by two advocates, breast surgeon Focus on advocacy, survivorship, support, metastatic breast cancer, new research
- 24. Communities with Chats Group When Tweets 2013 2014* Δ #ayacsm Every 3rd Thursday, 4 PM EST 199 19588 9700% #bcsm Monday, 9 PM EST 84391 80356 -5% #btsm 1st Sunday, 10 PM EST 49077 50431 3% #gyncsm 2nd Wednesday, 9 PM EST 4374 15649 258% #lcsm Every other Thursday, 8 PM EST 32339 70142 117% #mmsm 3390 9208 172% #pancsm Every 1st Thursday, 9 PM EST 257 3052 1087% Symplur.com * Tweets through Nov 27 2014
- 27. Collaboration Hashtag project is one example What about getting others to help you do your research?
- 28. • Released late September 2014 • 2 million slide high power fields analyzed by Thanksgiving Harness Amateurs with Games
- 30. Improving Clinical Trials Potential Use Example Journal PMID Recruitment, Lower costs Smoking Cessation Facebook recruiting JMIR 25348050 Adherence Smoking Cessation JNCI 24395994 Investigator Training Informed Consent Clinical Trial Design Protocol draft wikis Let public design/vote
- 34. Academic Disadavantage = Overhead Accounts for $10B of NCI budget 69% for Harvard as of 2013 What if NIH favors proposals with little or no overhead? Boston Globe, 3/18/2014 http://bit.ly/11Da86G
- 35. Thangasamy et al, Eur Urol 2014 , http://bit.ly/1io3Fx9
- 36. Publication
- 37. http://bit.ly/1HLbhKi Source: Nick Kim, lab-initio.com
- 40. Social Networking for Academics Users Article Uploads/Day 14 M 15,000 3 M 5 M 71,000 Source: The Lancet, Nov 2014 http://bit.ly/1ykZeOA 1300 share negative results, raw data every day
- 41. Motivations for Public Data Sharing Reason for Sharing % Standard practice 57% Increase visibility and impact 55% Public benefit 50% Journal requirement 42% Transparency, re-use 37% Personal trust in requester 30% Discoverability, accessibility 25% Funder requirement 23% Institutional requirement 18% Freedom from information request 13% Preservation 13% N = 2250 3% response rate Source: Wiley, March 2014. http://bit.ly/1rz4UQf
- 42. Source: Nature, August 2014 go.nature.com/fjvxxt
- 43. Where you are the research subject?
- 44. Sorrell v. IMS Health Vermont created legislation to prevent doctor prescription data mining by pharmacies selling data to drug marketers Supreme Court recently ruled 6-3 in favor of IMS Health because VT “burdens the speech of pharmaceuticals and data miners” Focus on harm to commercial free speech Sorrell v. IMS Health, 10-779
- 45. Reputation
- 46. Once it’s digital, it’s not yours
- 47. Therapists at Fruit Street Clinic
- 48. Monitor Your Reputation Mainstream media Key social networks And….
- 49. PubMed 2.0 – Comment on Abstracts Disease Trial Journal + Year PMID Anal Canal RTOG 87-04 JCO 1996 8823332 Bladder BC 2001 NEJM 2012 22512481 Breast NSABP B-06 NEJM 1985 3883167 Cervix GOG NEJM 1999 10202165 Esophagus RTOG 85-01 NEJM 1992 1584260 Glioblastoma EORTC-NCIC NEJM 2005 15758009 Larynx VA Larynx NEJM 1991 2034244 Lung CALGB 8433 NEJM 1990 2169587 Lung RTOG 0236 JAMA 2010 20233825 Prostate EORTC NEJM 1997 9233866 Prostate EORTC 22911 Lancet 2012 23084481
- 50. New York Medical College, http://bit.ly/1y8TlX9 Monitor Comments
- 52. Ethics in Flux Newer research models may conflict directly with Belmont Report HIPAA an issue as well Do we need to adapt current ethical frameworks? How should these technologies be used?
- 53. flowingdata.com
- 54. Saliva SNPs for detecting risk of disease $99 No genetic counseling Shut down by FDA 11/2013 Direct to Consumer (DTC) Research FDA, http://1.usa.gov/1nVOyUt
- 57. Research in an Apomediated World Subjects play more active role How do you regulate “when it is not clear who the researcher is and who the subject is” What role for IRBs if done online only? How can you separate trial recruitment from solicitation? D O’Connor, J Law Med Ethics 2013
- 58. Social Media and Citations G Eysenbach, J Med Int Res 2011 Correlation only? One RCT: no increased citations* Altmetrics used for Impact Factor *Fox CS et al, Circulation 2014
- 59. Open Access = More Citations? S Lawrence, Nature 2001 Easier to disseminate One RCT: no increased citations* *Davis et al, BMJ 2008
- 62. What is the alternative?
- 63. Radiation Oncology: Back to the Basement? M Katz, Mayo SMHN, http://mayocl.in/1tqewx2
- 64. Research and Create New Worlds
- 69. Audience by communication method Bik HM, Goldstein MS. PLOS Biol 2013
- 70. Is Social Media Compatible? Value Social Media Medicine Science Academia Accountability + + + + Attribution + + + + Medical Ethics + + Engage Public + Expertise + + Hierarchy + + Integrity + + + + Persistence + + + + Privacy + Transparency +
- 71. Will it be valued? Activity doesn’t guarantee Quality Rigor Need metrics that matter to value social media activity for academic promotion
- 72. Summary Social media are powerful communications tools Rapid adoption despite poorly defined risks & benefits More connected = more reward and risk Increasing attention in major journals Academic oncology needs to help us research best use in cancer care
- 73. Thank You Jay Harris Anthony D’Amico and Anthony Zietman Tracy Balboni and Akila Viswanathan Lee Aase, Meredith Gould, Patricia Anderson Twitter mentors and collaborators
- 74. Questions? You’re invited to contact me: Twitter: @subatomicdoc
Editor's Notes
- Hashtags let you “narrowcast” and create communities based upon interest - Why shouldn’t every disease have ability to create community?
- Change.org petition asking CMS to cover LDCT screening - acquired ~8300 signatures in 3 weeks with no robots
- Kimmy Ng
- Even can share unpublished research. Descriptive study on spleen dose from abdominal radiation 3131 views in 3 years for manuscript of a failed ASTRO abstract submission.
- Also potential for selection bias by studying only those in online communities