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Workplace Injury Law & Advocacy Group
         “Asbestos: The Cost in Dollars and Lives”
                                     Chicago, Illinois
                                       July 26, 2012


                                      LINDA REINSTEIN
                      Asbestos Disease Awareness Organization (ADAO)
                               President/CEO and Co-Founder
                                        linda@adao.us
Reinstein 7.26.2012
ADAO Memorial Dedication




                                          Larry

                                       1945 – 2012

                                    Mesothelioma Victim
                                       United States

Reinstein 7.26.2012
ALAN REINSTEIN
                         former ADAO President
                           Mesothelioma Victim




Reinstein 7.26.2012   May 2005           May 2006
Education. Advocacy. Community.


Reinstein 7.26.2012       www.adao.us
Asbestos is a Proven Human Carcinogen and
    There is No Safe Level of Exposure




Reinstein 7.26.2012
“Victim”: The Only Word that Describes

                      • A patient, living or deceased,
                        who was diagnosed with an
                        asbestos-related disease

                      • Person exposed to asbestos

                      • Family member of those exposed
                        or diagnosed

                      • Decedent
Reinstein 7.26.2012
Convoluted Path from Exposure to Diagnosis
    •1. Latency Period is 10 – 50 years from Exposure to
    Diagnosis

    •2. Confusing and Indirect Medical History Inquiries

    •3. Common Symptoms
     •   Slight persistent cough
     •   Chest pain
     •   Difficulty breathing
     •   Pleural effusion

    •4. Uncommon Asbestos-Caused Diseases
     •   Mesothelioma (Pleural and Peritoneal)
     •   Cancers
     •   Pleural Plaques
     •   Asbestosis
How Small is Asbestos?


                       2-3 rice grains   20,000 Asbestos Fibers




                                         5-6 human hairs



Reinstein 7.26.2012
Notable Persons Exposed to Asbestos
• Steve McQueen, Actor

• Warren Zevon, Musician

• Merlin Olsen, NFL Player, Los Angeles Rams

• Malcolm McLearen, Musician and Manager

• Hamilton Jordan, Chief of Staff under President Carter

• Admiral Elmo Zumwalt, Chief of Naval Operations

• Richard Hernstein, Author

• Paul Gleason, Actor

• Bruce Vento, U.S. Representative
                                             Reinstein 7.25.2012
The Collateral Damage Asbestos

   • New Patient Profile
      • Woman
      • Under the age of 50
      • Environmental or Take-Home Exposure

   • 10,000 annual asbestos-caused deaths in the USA

   • 107,000 annual asbestos-caused deaths globally

   • 3,000 new cases of mesothelioma are diagnosed each
     year within the United States
Reinstein 7.26.2012
Alan’s mesothelioma medical expenses
        exceeded $1,000,000
President’s Cancer Panel




         “Construction workers were found to be
             11 times more likely to develop
         mesothelioma, due to asbestos exposures
                       at the site.”
Reinstein 7.26.2012
Occupational Diseases are Not an Accident
                      The International Journal of Occupational and
                      Environmental Health 2012 by Joe LaDou

                      • Occupational diseases affect 1 in 5 Americans

                      • However, only 1 in 20 victims receive workers’
                        comp benefits

                      • Those with occupational cancer, less than 1 in 100
                        workers receive benefits

                      • The costs of workers’ compensation are largely
                        evaded by state agencies and private insurers by
                        amending state laws or cost shifting

                      • Because workers’ compensation is a state by state
                        basis, there is no central authority, which leads to
                        “self-perpetuating bureaucracies” that are
                        “interested only in redesigns as opposed to
                        reform”
Reinstein 7.26.2012
The True Cost of Disability and Death
   “For each life lost, a shattered family is left behind”

         • Physical

         • Financial

         • Emotional

         • Psychosocial

Reinstein 7.26.2012
“Perfect Storm” of Chaos
 •    Diagnosis
 •    Treatment
 •    Burden of proof
 •    Processing compensation
      claims
       • Delayed compensation
       • State laws


Reinstein 7.26.2012
Reinstein 7.26.2012
Occupational Exposure
                      Under the Steps of the Capitol




Reinstein 7.26.2012
“As many as 35 million homes and
          businesses are insulated lethal asbestos-
                   tainted vermiculite.”




     “Ten years ago, then EPA investigator Kevin McDermott crawled
     through an attic in Manchester, Wash., confirming the presence of
           130 bags of asbestos-containing Zonolite insulation.”
Reinstein 7.26.2012
Environmental Exposure:
               Natural and Man-made Disasters

                                   W.R. Grace Vermiculite Mine




                      Joplin, MO             Libby, MT
Reinstein 7.26.2012
Catastrophic Fallout of 9/11
                        September 11, 2011 Study




Reinstein 7.26.2012
Linda@adao.us
Reinstein 7.26.2012
Reinstein 7.26.2012
“Never underestimate the power of a small group of committed people to
change the world. In fact, it is the only thing that ever has.” Margret Meade




                              Linda@adao.us

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Reinstein: "Asbestos: The Cost in Dollars and Lives”

  • 1. Workplace Injury Law & Advocacy Group “Asbestos: The Cost in Dollars and Lives” Chicago, Illinois July 26, 2012 LINDA REINSTEIN Asbestos Disease Awareness Organization (ADAO) President/CEO and Co-Founder linda@adao.us Reinstein 7.26.2012
  • 2. ADAO Memorial Dedication Larry 1945 – 2012 Mesothelioma Victim United States Reinstein 7.26.2012
  • 3. ALAN REINSTEIN former ADAO President Mesothelioma Victim Reinstein 7.26.2012 May 2005 May 2006
  • 5. Asbestos is a Proven Human Carcinogen and There is No Safe Level of Exposure Reinstein 7.26.2012
  • 6. “Victim”: The Only Word that Describes • A patient, living or deceased, who was diagnosed with an asbestos-related disease • Person exposed to asbestos • Family member of those exposed or diagnosed • Decedent Reinstein 7.26.2012
  • 7. Convoluted Path from Exposure to Diagnosis •1. Latency Period is 10 – 50 years from Exposure to Diagnosis •2. Confusing and Indirect Medical History Inquiries •3. Common Symptoms • Slight persistent cough • Chest pain • Difficulty breathing • Pleural effusion •4. Uncommon Asbestos-Caused Diseases • Mesothelioma (Pleural and Peritoneal) • Cancers • Pleural Plaques • Asbestosis
  • 8. How Small is Asbestos? 2-3 rice grains 20,000 Asbestos Fibers 5-6 human hairs Reinstein 7.26.2012
  • 9. Notable Persons Exposed to Asbestos • Steve McQueen, Actor • Warren Zevon, Musician • Merlin Olsen, NFL Player, Los Angeles Rams • Malcolm McLearen, Musician and Manager • Hamilton Jordan, Chief of Staff under President Carter • Admiral Elmo Zumwalt, Chief of Naval Operations • Richard Hernstein, Author • Paul Gleason, Actor • Bruce Vento, U.S. Representative Reinstein 7.25.2012
  • 10. The Collateral Damage Asbestos • New Patient Profile • Woman • Under the age of 50 • Environmental or Take-Home Exposure • 10,000 annual asbestos-caused deaths in the USA • 107,000 annual asbestos-caused deaths globally • 3,000 new cases of mesothelioma are diagnosed each year within the United States Reinstein 7.26.2012
  • 11. Alan’s mesothelioma medical expenses exceeded $1,000,000
  • 12. President’s Cancer Panel “Construction workers were found to be 11 times more likely to develop mesothelioma, due to asbestos exposures at the site.” Reinstein 7.26.2012
  • 13. Occupational Diseases are Not an Accident The International Journal of Occupational and Environmental Health 2012 by Joe LaDou • Occupational diseases affect 1 in 5 Americans • However, only 1 in 20 victims receive workers’ comp benefits • Those with occupational cancer, less than 1 in 100 workers receive benefits • The costs of workers’ compensation are largely evaded by state agencies and private insurers by amending state laws or cost shifting • Because workers’ compensation is a state by state basis, there is no central authority, which leads to “self-perpetuating bureaucracies” that are “interested only in redesigns as opposed to reform” Reinstein 7.26.2012
  • 14. The True Cost of Disability and Death “For each life lost, a shattered family is left behind” • Physical • Financial • Emotional • Psychosocial Reinstein 7.26.2012
  • 15. “Perfect Storm” of Chaos • Diagnosis • Treatment • Burden of proof • Processing compensation claims • Delayed compensation • State laws Reinstein 7.26.2012
  • 17. Occupational Exposure Under the Steps of the Capitol Reinstein 7.26.2012
  • 18. “As many as 35 million homes and businesses are insulated lethal asbestos- tainted vermiculite.” “Ten years ago, then EPA investigator Kevin McDermott crawled through an attic in Manchester, Wash., confirming the presence of 130 bags of asbestos-containing Zonolite insulation.” Reinstein 7.26.2012
  • 19. Environmental Exposure: Natural and Man-made Disasters W.R. Grace Vermiculite Mine Joplin, MO Libby, MT Reinstein 7.26.2012
  • 20. Catastrophic Fallout of 9/11 September 11, 2011 Study Reinstein 7.26.2012
  • 24. “Never underestimate the power of a small group of committed people to change the world. In fact, it is the only thing that ever has.” Margret Meade Linda@adao.us

Editor's Notes

  1. Physical – Worker unable to help around the home or with necessary responsibilities Financial – Often, workers are primary earners for family, and when on disability, income may not be enough to support their familyEmotionally – Family members must deal with constant feelings of grief, anger, etc, which can impact their lives negatively in ways not covered Pyscho-social – Worker and members of their family may become detached from their social circle
  2. Often, when a worker is diagnosed with an occupational disease, it can feel like there is a “perfect storm” that must be battled. With occupational diseases caused by asbestos, there is the problem of a late onset period. Mesothelioma and other asbestos-caused diseases typically do not present until 30+ years after exposureFew treatment options are available, which only buy more time, rather than provide a cureProof that the occupational disease in question is truly the responsibility of the company paying benefits is a difficult process to navigate. Asbestos is a mineral than cannot be seen, tasted, touched, or smelled, which places the onus of a large burden of proof on the victim, who has many other problems to deal with and cannot often afford the time and energy needed to provide all the necessary documents. A long waiting period for benefits causes more stress and sadly, many patients never live to see their benefits realized. Small amounts of money are given and one must first deal with bureaucratic red tape before even seeing a minor amount.
  3. The United States imported 1,100 metric tons of asbestos between July 2010 – July 2011. 92% of this asbestos comes from Canada. Though this figure is the lowest amount of asbestos imported by the U.S. since 1909, consumption increased by 6% over this last calendar year. By continuing to allow asbestos to be imported and used within the United States, more and more people will be exposed through everyday products, such as roofing materials
  4. “The Lancet Medical Journal report is the first comprehensive cancer study of New York City Firefighters after 9/11. This federally funded study shows firefighters working at the site had ten percent more cancers than the general public and 19 percent more cancers than firemen not involved. In all, there were 263 cancers among almost nine thousand exposed firefighters.”[2]“The study clearly shows that World Trade Center exposure in these firefighters led to an increase in all types of cancer,” said David Prezant, FDNY chief medical officer and one of the co-authors of the study published Thursday in The Lancet. “But this is not an epidemic — thank God.”[3]http://www.asbestosdiseaseawareness.org/archives/6712