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SOCIAL TECHNOLOGIES
POWER IN IN
COLLABORATIVE HEALTH
POLICY AND PRACTICE
A COLLABORATIVE SEMINAR
Gonzalo Bacigalupe, EdD, MPH
Ikerbasque Research Professor
gonzalo.bacigalupe@deusto.es
bacigalupe.wordpress.c
om
Collaborative Family Healthcare Association 12th Annual Conference
October 21-23, 2010 Louisville, Kentucky U.S.A.
Session # C4a
Oct. 22, 2010 - 3:30-5:00
Faculty Disclosure
I have not had any relevant financial
relationships during the past 12 months.
Need/Practice Gap & Supporting
Resources
What is the scientific basis for this talk?
 Systematic review of research and clinical
literature
 Peer review article by author: basis to justify
need
 An iterative analysis of e-Health sites
 Expert review via open invitation to and
participation by #CHSM #CHSMEU
 Participation of collaborative health
Objectives
 Define the scope of collaborative health activities
shaped by the use of social technologies;
 Create a categorical classification of emergent
communication, social media, & social technologies
to evaluate their impact;
 Discuss results of a systematic analysis of the
literature on social networking technologies and its
impact on patients, healthcare providers, and policy
makers;
 Evaluate critically the challenges & ways of
approaching a task that questions professional and
Expected Outcome
 Acknowledge potential of
social technologies ability to
strengthen collaborative
health practices.
 Discuss criteria and
categories of e-health tools
in light of collaborative
health care assumptions
and goals.
 Triangulate ongoing
systematic qualitative
research analysis via
participation in checking for
accuracy in development of
model linking collaborative
health and social
Social media / Social technologies
 Highly accessible
tools (ICTs) that allow
you to connect with
others via a diverse
set of digital devices.
 Tools allow not only to
observe what others
have produced but
also to engage in the
production of media.
Applications
 Blogs: Frequent updates, invites dialogue, identity
defined by blogger
 Microblogs: Brief blog entries (i.e., 140
characters)
 Podcasts: Audio/video downloadable to many
digital devices
 Wikis: Website designed for collaboration
 Social Networks: Virtual communities; main
purpose is social interaction
 Web-Conferencing: Audio/video synchronic
interaction
The conversation
Information
www.flickr.com/photos/bacigalupe/385042878/sizes/o/
The Information Revolution
e-Health Scope
 E-Record: Unified clinical history
 Electronic prescription
 Telemedicine
 E-Monitoring
 Targeted Info
 Bottom up Innovation
 Interdisciplinary Sharing
 Networks core
 Transparent/collaborative clinical trials
 e-Patient
 …
Why?
Why?
Why?
Methodology
 Sarasohn- Kahn’s (2009) report on how online and mobile
tools help both doctors and patients manage chronic
illnesses was a starting point for generating a draft list of e-
Health tools.
 Extensive search via Pubmed, Google Scholar, Google, and
Twitter. Referenced works from retrieved articles were also
used.
 During data collection period, inclusion criteria refined to
include variables that may inform power to foster
collaboration: interoperability, viability, sustainability,
scalability, number of hits.
 Assessed if there were reports about the tools on
LexisNexis (media), Pubmed (healthcare), Google Scholar
(social sciences), and Google (business, market, general
public)
 For websites that required user accounts for access, we
Criteria for Inclusion
 eHealth Core:
 Is it main goal and focus healthcare?
 Is it directed to patients and/or health care
providers?
 Is it recommended/approved by #hcsm experts?
 Technical Access:
 Does the site work?
 Is it not under construction?
 Is it platform neutral?
 Has it have any activity in the last month?
 Should we consider other criteria?
Tools: Collaborative Potential
 Very Low: No interaction between creators and
users
 Low: Users able to comment on content but
creators do not necessarily interact with
audience
 Moderate: Users able to interact without
moderation
 High: Intends that users interact with each
other
 Very High: Allows multiple stakeholders
Categories
 Static Webpage
(Web 1.0)
 Information
Exchange
 Clinical Networks
 e-Patient / e-Doc
Networks
 e-Patient
Networks
 Health
Research
Networks
 eHealth
Mobile
Applications
 Interactive
Media
 Primary Care
e-Practices
Static Webpage
(W1.0)
 “Basic” WWW
doesn’t allow
visitors to modify
content
http://scienceroll.com by Bertalan Mesko
Static Webpage
(W1.0)
 “Basic” WWW
doesn’t allow
visitors to modify
content
http://runningahospital.blogspot.com by Paul Levy
Static Webpage
(W1.0)
 “Basic”
WWW
doesn’t
allow visitors
to modify
content
http://thecarrot.com
Information
Exchange
 Users able to
add/edit WWW
content and able to
interact with one
another
http://e-patients.net
Information
Exchange
 Users able
to add/edit
WWW
content and
able to
interact with
one another
www.imedix.com
Information
Exchange
 Users able to
add/edit WWW
content and able
to interact with
one another
www.jopm.org
Clinical
Networks
 Health
care
providers
can
meet/inte
ract with
one
another
www.doctrs.com
Clinical
Networks
 Health
care
providers
can
meet/inter
act with
one
another
www.simposier.com
Clinical Networks
 Health
care
providers
meet/inter
act/consul
t with one
another
www.iconsinmed.or
g
e-Patient / e-Doctor Networks
 Online health
social network
in which
patients
connect with
other patients
and receive
consultation
from health
care providers
www.dailystrength.com
e-Patient / e-Doctor Networks
 Online health
social network
in which
patients
connect with
other patients
and receive
consultation
from health
care providers
http://ehealthforum.com
e-Patient / e-Doctor Networks
 Online health
social network in
which patients
can connect with
other patients
and receive
consultation
from health care
providers
www.medhelp.org
E-Patient
Networks
 Patients
or loved
ones,
often with
same
health
condition
s, can
meet or
interact
with one
another
www.patientslikeme.c
om
E-Patient
Networks
 Patients
or loved
ones,
often with
same
health
condition
s, can
meet or
interact
with one
anotherwww.disaboom.com
E-Patient
Networks
 Patients or
loved ones,
often with
same health
conditions, can
meet or
interact with
one another
www.experienceproject.c
om
E-Patient
Networks
 Consumer
s, often
with same
health
conditions
or loved
ones with
same
health
conditions,
can meet
or interact
with one
another
www.FacetoFacehealth.com
Health Research
Networks
 Sites where
researchers
can meet
and interact
with one
another with
the specific
goal of
connecting
about
research
topicswww.vivoweb.org
Health Research
Networks
 Sites where
researchers
can meet
and interact
with one
another with
the specific
goal of
connecting
about
research
topics
www.scientistsolutions.
com
Health Research
Networks
 Sites where
researchers
can meet
and interact
with one
another with
the specific
goal of
connecting
about
research
topics
www.biomedexperts.co
m
eHealth Mobile Applications
 Cell phone
applications
or other
mobile
devices
geared
towards
health
manageme
nt and/or
prevention
www.intel.com healthguide
www.healthhonors.com
www.zumelife.com
29% of adults use their mobile phones
to search for #health or #medical info
eHealth
Mobile Apps
 Cell phone
applications or other
mobile devices
geared towards health
management and/or
prevention
http://www.intel.com/about/companyinfo/healthcare/products/index.ht
eHealth Mobile Applications
 Cell phone
applications
or other
mobile
devices
geared
towards
health
manageme
nt and/or
prevention
www.healthhonors.com
eHealth Mobile Applications
 Cell phone
applications
or other
mobile
devices
geared
towards
health
manageme
nt and/or
prevention
www.zumelife.com
Interactive Media
 Virtual
games that
allow users
to explore
health
management
with the
ultimate goal
of
encouraging
users to
monitor their
health
conditions
Interactive Media
 Virtual games
that allow
users to
explore health
management
with the
ultimate goal
of
encouraging
users to
monitor their
health
conditions
better
http://av.vimeo.com/29223/421/1913254.mp4?token=1287633684_f8a9acd4201067bf8d30e2d076121af7
Primary Care e-Practices
 Gives health
care providers
the ability to
provide
services to
patients
remotely - via
the web,
cellular phones,
and other
mobile devices
http://consumersonline.hmsa
Primary Care e-Practices
 Gives health
care providers
the ability to
provide
services to
patients
remotely - via
the web,
cellular phones,
and other
mobile devices
http://hellohealth.com
HelloHealth Promotional
Primary Care e-Practices
 Gives health
care
providers the
ability to
provide
services to
patients
remotely -
via the web,
cellular
phones, and
other mobile
devices
www.tplusmedical.com
Primary Care e-Practices
 Gives health
care providers
the ability to
provide
services to
patients
remotely - via
the web,
cellular
phones, and
other mobile
devices
www.Inrangesystems.com
Primary Care e-Practices
 Gives health
care
providers
the ability to
provide
services to
patients
remotely -
via the web,
cellular
phones, and
other mobile
devices
www.healthvault.co
m
Collaborative Variables
Criteria?
 Communication direction
 Audience
 Author
 Ownership? Profit/or not
 Purpose
 Source (clinical, personal, EBM)
 Type of tool
 Interoperability
 Sustainability
 Scalability
 Access (cultural attention)
Future Research Steps
 Survey of sites
 Scoring
 Scale development
 Measuring actual impact
Rethinking the paradigm(s)
 How could it change your practice?
 What seems difficult to imagine?
 What solutions emerge?
 What challenges are ahead?
Alternative Discourses
Critique Possibilities
Isolation Feelings of support
Overwhelming Informed
Wrong information Apomediation + Info Available
Lack of support Finding support
Digital divide Digital availability
Lack of confidentiality Transparency
It’s only virtual It’s real
Boundaries broken Learning opportunities
Collaborative opportunities
Translational research
Clinical trials
Tailoring intervention (long tail)
Interdisciplinary exchange
…

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Social Technologies Power to Impact Collaborative Health

  • 1. SOCIAL TECHNOLOGIES POWER IN IN COLLABORATIVE HEALTH POLICY AND PRACTICE A COLLABORATIVE SEMINAR Gonzalo Bacigalupe, EdD, MPH Ikerbasque Research Professor gonzalo.bacigalupe@deusto.es bacigalupe.wordpress.c om Collaborative Family Healthcare Association 12th Annual Conference October 21-23, 2010 Louisville, Kentucky U.S.A. Session # C4a Oct. 22, 2010 - 3:30-5:00
  • 2. Faculty Disclosure I have not had any relevant financial relationships during the past 12 months.
  • 3. Need/Practice Gap & Supporting Resources What is the scientific basis for this talk?  Systematic review of research and clinical literature  Peer review article by author: basis to justify need  An iterative analysis of e-Health sites  Expert review via open invitation to and participation by #CHSM #CHSMEU  Participation of collaborative health
  • 4. Objectives  Define the scope of collaborative health activities shaped by the use of social technologies;  Create a categorical classification of emergent communication, social media, & social technologies to evaluate their impact;  Discuss results of a systematic analysis of the literature on social networking technologies and its impact on patients, healthcare providers, and policy makers;  Evaluate critically the challenges & ways of approaching a task that questions professional and
  • 5. Expected Outcome  Acknowledge potential of social technologies ability to strengthen collaborative health practices.  Discuss criteria and categories of e-health tools in light of collaborative health care assumptions and goals.  Triangulate ongoing systematic qualitative research analysis via participation in checking for accuracy in development of model linking collaborative health and social
  • 6. Social media / Social technologies  Highly accessible tools (ICTs) that allow you to connect with others via a diverse set of digital devices.  Tools allow not only to observe what others have produced but also to engage in the production of media.
  • 7.
  • 8. Applications  Blogs: Frequent updates, invites dialogue, identity defined by blogger  Microblogs: Brief blog entries (i.e., 140 characters)  Podcasts: Audio/video downloadable to many digital devices  Wikis: Website designed for collaboration  Social Networks: Virtual communities; main purpose is social interaction  Web-Conferencing: Audio/video synchronic interaction
  • 12. e-Health Scope  E-Record: Unified clinical history  Electronic prescription  Telemedicine  E-Monitoring  Targeted Info  Bottom up Innovation  Interdisciplinary Sharing  Networks core  Transparent/collaborative clinical trials  e-Patient  …
  • 13. Why?
  • 14. Why?
  • 15. Why?
  • 16.
  • 17. Methodology  Sarasohn- Kahn’s (2009) report on how online and mobile tools help both doctors and patients manage chronic illnesses was a starting point for generating a draft list of e- Health tools.  Extensive search via Pubmed, Google Scholar, Google, and Twitter. Referenced works from retrieved articles were also used.  During data collection period, inclusion criteria refined to include variables that may inform power to foster collaboration: interoperability, viability, sustainability, scalability, number of hits.  Assessed if there were reports about the tools on LexisNexis (media), Pubmed (healthcare), Google Scholar (social sciences), and Google (business, market, general public)  For websites that required user accounts for access, we
  • 18. Criteria for Inclusion  eHealth Core:  Is it main goal and focus healthcare?  Is it directed to patients and/or health care providers?  Is it recommended/approved by #hcsm experts?  Technical Access:  Does the site work?  Is it not under construction?  Is it platform neutral?  Has it have any activity in the last month?  Should we consider other criteria?
  • 19. Tools: Collaborative Potential  Very Low: No interaction between creators and users  Low: Users able to comment on content but creators do not necessarily interact with audience  Moderate: Users able to interact without moderation  High: Intends that users interact with each other  Very High: Allows multiple stakeholders
  • 20. Categories  Static Webpage (Web 1.0)  Information Exchange  Clinical Networks  e-Patient / e-Doc Networks  e-Patient Networks  Health Research Networks  eHealth Mobile Applications  Interactive Media  Primary Care e-Practices
  • 21. Static Webpage (W1.0)  “Basic” WWW doesn’t allow visitors to modify content http://scienceroll.com by Bertalan Mesko
  • 22. Static Webpage (W1.0)  “Basic” WWW doesn’t allow visitors to modify content http://runningahospital.blogspot.com by Paul Levy
  • 23. Static Webpage (W1.0)  “Basic” WWW doesn’t allow visitors to modify content http://thecarrot.com
  • 24. Information Exchange  Users able to add/edit WWW content and able to interact with one another http://e-patients.net
  • 25. Information Exchange  Users able to add/edit WWW content and able to interact with one another www.imedix.com
  • 26. Information Exchange  Users able to add/edit WWW content and able to interact with one another www.jopm.org
  • 30. e-Patient / e-Doctor Networks  Online health social network in which patients connect with other patients and receive consultation from health care providers www.dailystrength.com
  • 31. e-Patient / e-Doctor Networks  Online health social network in which patients connect with other patients and receive consultation from health care providers http://ehealthforum.com
  • 32. e-Patient / e-Doctor Networks  Online health social network in which patients can connect with other patients and receive consultation from health care providers www.medhelp.org
  • 33. E-Patient Networks  Patients or loved ones, often with same health condition s, can meet or interact with one another www.patientslikeme.c om
  • 34. E-Patient Networks  Patients or loved ones, often with same health condition s, can meet or interact with one anotherwww.disaboom.com
  • 35. E-Patient Networks  Patients or loved ones, often with same health conditions, can meet or interact with one another www.experienceproject.c om
  • 36. E-Patient Networks  Consumer s, often with same health conditions or loved ones with same health conditions, can meet or interact with one another www.FacetoFacehealth.com
  • 37. Health Research Networks  Sites where researchers can meet and interact with one another with the specific goal of connecting about research topicswww.vivoweb.org
  • 38. Health Research Networks  Sites where researchers can meet and interact with one another with the specific goal of connecting about research topics www.scientistsolutions. com
  • 39. Health Research Networks  Sites where researchers can meet and interact with one another with the specific goal of connecting about research topics www.biomedexperts.co m
  • 40. eHealth Mobile Applications  Cell phone applications or other mobile devices geared towards health manageme nt and/or prevention www.intel.com healthguide www.healthhonors.com www.zumelife.com 29% of adults use their mobile phones to search for #health or #medical info
  • 41. eHealth Mobile Apps  Cell phone applications or other mobile devices geared towards health management and/or prevention http://www.intel.com/about/companyinfo/healthcare/products/index.ht
  • 42. eHealth Mobile Applications  Cell phone applications or other mobile devices geared towards health manageme nt and/or prevention www.healthhonors.com
  • 43. eHealth Mobile Applications  Cell phone applications or other mobile devices geared towards health manageme nt and/or prevention www.zumelife.com
  • 44. Interactive Media  Virtual games that allow users to explore health management with the ultimate goal of encouraging users to monitor their health conditions
  • 45. Interactive Media  Virtual games that allow users to explore health management with the ultimate goal of encouraging users to monitor their health conditions better http://av.vimeo.com/29223/421/1913254.mp4?token=1287633684_f8a9acd4201067bf8d30e2d076121af7
  • 46. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices http://consumersonline.hmsa
  • 47. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices http://hellohealth.com
  • 49. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices www.tplusmedical.com
  • 50. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices www.Inrangesystems.com
  • 51. Primary Care e-Practices  Gives health care providers the ability to provide services to patients remotely - via the web, cellular phones, and other mobile devices www.healthvault.co m
  • 52. Collaborative Variables Criteria?  Communication direction  Audience  Author  Ownership? Profit/or not  Purpose  Source (clinical, personal, EBM)  Type of tool  Interoperability  Sustainability  Scalability  Access (cultural attention)
  • 53. Future Research Steps  Survey of sites  Scoring  Scale development  Measuring actual impact
  • 54. Rethinking the paradigm(s)  How could it change your practice?  What seems difficult to imagine?  What solutions emerge?  What challenges are ahead?
  • 55. Alternative Discourses Critique Possibilities Isolation Feelings of support Overwhelming Informed Wrong information Apomediation + Info Available Lack of support Finding support Digital divide Digital availability Lack of confidentiality Transparency It’s only virtual It’s real Boundaries broken Learning opportunities Collaborative opportunities Translational research Clinical trials Tailoring intervention (long tail) Interdisciplinary exchange …

Editor's Notes

  1.   it opens up the possibility for clinicians, researchers, and the public at large to engage in conversation, share information, analyze it collaboratively, and interact more efficiently. Social media tools are also interoperable, live in the “cloud”, and for the most part are not attached to a particular device or software; all of which means that we do not need to have one specific device to interact with others. What is the impact of these social technologies on individuals and families? Phone texting, Facebook, Twitter, LinkedIn, MySpace, and an innumerous set of technologies have become part of the lives of individuals and families. They offer new ways of connecting and disconnecting, posing challenges for clinicians who need to learn of new cultural mores and attend in new ways to privacy and confidentiality issues. These digital technologies introduce new ways of relating to others and all assessment about their goodness and/or negative consequences require a bit of humility and curiosity. I explore in this presentation some of the questions we may ask as psychologists in relation to how some of these technologies introduce changes in the ways we relate, how we define intimacy, friendship, and what we need to know as we embark in clinical work with the born digital generation as digital immigrants’ knowledge seems not comprehensive to understand the changes introduced by these technologies.
  2. It use to flow from one direction
  3. http://www.youtube.com/watch?v=-4CV05HyAbM