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Author note: Edited Tweets from @ctsinclair who attended the 2011 American Academy of Hospice and Pallaitive Medicine Annual Assembly
                                             Pleas see disclaimer at slideshare.net/ctsinclair

 Arnold's subject - Things that I thought were true that are not
 Arnold reading 'The Journey Down the Sidewalk of Life' http://bit.ly/hggOCm good poem for mistakes in health care
 Mistakes help one see how the future might be different. -Arnold
 Arnold - Talent is overrated - what you need is intense practice, intentional and focused, immediate feedback with a coach
 As a teacher my job is not to think about a 'problem learner', but to think abt how I can teach someone best to do something -Arnold
 Arnold - Focus on the role of behavioral economics and the role of emotions influencing preferences
 Affect functions as info; spotlights certain info, motivates gathering more info, serves as common currency - Arnold
 Arnold - Teaching is about creating a space where learning can occur - motivate and catalyze, make explicit connections #meded
 Walker Percy "If you listen carefully to your patients they will tell you not only what is wrong with them but what is wrong with you

 RT @hospicepharmacy: Legislation filed to legalize medical marijuana in #Kansas http://bit.ly/fHOsbZ #cancer #hospice
 Detmer - Demise of expert-based practice is inevitable, the information blows past ability for human cognition
 "Everyone complains of his memory, but no one complains of his judgement." - Duc De La Rochefoucauld from Detmer
 RT @renee_berry: "We really need to be focusing on the people side of this far more than what were doing" -Detmer
 Detmer - "We've talked about working as teams (in health care) more than we have actually done it"
 If you want to improve care it is about reducing variations in care. - Leider
 Leider - Quote from Dr. Marc Bard from Harvard - "Physicians practice alone, together" #MDchat #RNchat

 "Would I be surprised if this patient died in next year" accurate for prognostication from #renal docs in dialysis patients.
 Moss - increasing evidence showing even in the elderly dialysis may not be better than conservative/med management in survival #rena'
 Nearly 80,000 patients died with End Stage Renal Disease (had been on HD), only 21% received hospice services - Moss
 Moss - "Only about a dozen nephrologists in US that are certified in hospice and palliative medicine" Love to meet them #renal
 Moss - Most common cause of death in patients with end stage renal disease is actually cardiovascular disease

 Question in session on #Renal: Wouldn't methadone be preferred over Fentanyl given incr chance of neuropathic pain? Moss (and me) Yes
 53% of Hospice physicians felt that other people misperceived actions as hastening death in natl survey - Goldstein
 Goldstein - 25 docs had some investigation about possible hastening death. Mostly by other health care team members, hospital based
 Goldstein's presentation->sobering. Palliative docs underestimate the risk of being investigate and practices likely to be investigated
 Goldstein recs: open lines of comm with other HC staff, meticulous documentation (document opioid calculations), mediation efforts
 Goldstein - Publishing this study needs to be done with measured caution because of significant risk of misunderstanding/soundbites
 Rushton - Avoid labeling parents as 'difficult' or 'uncaring' get to know their challenges, their view point #peds
 Staff labeled mother as uncaring. Her response- I'm home getting life in order in case he gets discharged. He is safe w/ you -Rushton

 Mcpherson - Dalfasmpridine (Ampyra) for #MultipleSclerosis Can help with function, but Cots $1000 for 30d, watch out for seizures
 Macpherson - Dabigatran etexilate mesylate (Pradaxa) new competitor with Warfarin, stroke embolism risk reducer #pharma
 Macpherson - Pradaxa fewer drug interactions, no INR checks like coumadin, but at what cost. $7/day vs. 50cents for coumadin
 Macpherson - Must be careful in storing Pradaxa - once opened only good for 30days #pharma
 Macpherson - Fentanyl SL tablet (Abstral) 5th rapid acting trans mucosal (actiq, gen actiq, Onsolis, Fentora) #pharma
 RT @gcooneymd: Opioid tolerant defined as 60 MG OMS daily for one week
 Macpherson - REMS strategy for Abstral - good preview for other opioids in future. Prescriber are specially certified - Adoption rate?
 Macpherson - Abstral REMS the pharmacist and wholeseller also has to be specially certified. Good luck with getting all 3 in your town
 Macpherson - FDA def of opioid tolerant - 60mg morphine, 24mcg fent patch, 30mg oxycodone, or 8mg hydromorphone per day
 Macpherson - BuTrans Transdermal buprenorphine - patch worn for 7 days, need to titrate patient down before starting
 Macpherson - Primary care providers have warm/fuzzy feeling towards transdermal systems -"Totally agree, but variable understanding'
 Macpherson - Nuedexta (Dextromethorphan/Quinidine) for uncontrolled laughing/crying in multiple neurological diseases #ALS #MS
 Macpherson - Acetaminophen IV (Ofirmev) - Finally I have wanted to have this so many times
 Macpherson - OxyContin Reformulation-60 tab AWP $375, insoluable in alcohol, forms viscous gel with water, some pts say not effective
 Macpherson - Cryostat - Most important palliative care therapy I am talking about - cold pack for hemorrhoid relief
 Macpherson Palliative related med Pipeline Ereska, Fentora Long Acting, Posidur, Rylomine 'get used to these names'

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What I Learned at the 2011 AAHPM Conference in Tweets

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Author note: Edited Tweets from @ctsinclair who attended the 2011 American Academy of Hospice and Pallaitive Medicine Annual Assembly Pleas see disclaimer at slideshare.net/ctsinclair Arnold's subject - Things that I thought were true that are not Arnold reading 'The Journey Down the Sidewalk of Life' http://bit.ly/hggOCm good poem for mistakes in health care Mistakes help one see how the future might be different. -Arnold Arnold - Talent is overrated - what you need is intense practice, intentional and focused, immediate feedback with a coach As a teacher my job is not to think about a 'problem learner', but to think abt how I can teach someone best to do something -Arnold Arnold - Focus on the role of behavioral economics and the role of emotions influencing preferences Affect functions as info; spotlights certain info, motivates gathering more info, serves as common currency - Arnold Arnold - Teaching is about creating a space where learning can occur - motivate and catalyze, make explicit connections #meded Walker Percy "If you listen carefully to your patients they will tell you not only what is wrong with them but what is wrong with you RT @hospicepharmacy: Legislation filed to legalize medical marijuana in #Kansas http://bit.ly/fHOsbZ #cancer #hospice Detmer - Demise of expert-based practice is inevitable, the information blows past ability for human cognition "Everyone complains of his memory, but no one complains of his judgement." - Duc De La Rochefoucauld from Detmer RT @renee_berry: "We really need to be focusing on the people side of this far more than what were doing" -Detmer Detmer - "We've talked about working as teams (in health care) more than we have actually done it" If you want to improve care it is about reducing variations in care. - Leider Leider - Quote from Dr. Marc Bard from Harvard - "Physicians practice alone, together" #MDchat #RNchat "Would I be surprised if this patient died in next year" accurate for prognostication from #renal docs in dialysis patients. Moss - increasing evidence showing even in the elderly dialysis may not be better than conservative/med management in survival #rena' Nearly 80,000 patients died with End Stage Renal Disease (had been on HD), only 21% received hospice services - Moss Moss - "Only about a dozen nephrologists in US that are certified in hospice and palliative medicine" Love to meet them #renal Moss - Most common cause of death in patients with end stage renal disease is actually cardiovascular disease Question in session on #Renal: Wouldn't methadone be preferred over Fentanyl given incr chance of neuropathic pain? Moss (and me) Yes 53% of Hospice physicians felt that other people misperceived actions as hastening death in natl survey - Goldstein Goldstein - 25 docs had some investigation about possible hastening death. Mostly by other health care team members, hospital based Goldstein's presentation->sobering. Palliative docs underestimate the risk of being investigate and practices likely to be investigated Goldstein recs: open lines of comm with other HC staff, meticulous documentation (document opioid calculations), mediation efforts Goldstein - Publishing this study needs to be done with measured caution because of significant risk of misunderstanding/soundbites Rushton - Avoid labeling parents as 'difficult' or 'uncaring' get to know their challenges, their view point #peds Staff labeled mother as uncaring. Her response- I'm home getting life in order in case he gets discharged. He is safe w/ you -Rushton Mcpherson - Dalfasmpridine (Ampyra) for #MultipleSclerosis Can help with function, but Cots $1000 for 30d, watch out for seizures Macpherson - Dabigatran etexilate mesylate (Pradaxa) new competitor with Warfarin, stroke embolism risk reducer #pharma Macpherson - Pradaxa fewer drug interactions, no INR checks like coumadin, but at what cost. $7/day vs. 50cents for coumadin Macpherson - Must be careful in storing Pradaxa - once opened only good for 30days #pharma Macpherson - Fentanyl SL tablet (Abstral) 5th rapid acting trans mucosal (actiq, gen actiq, Onsolis, Fentora) #pharma RT @gcooneymd: Opioid tolerant defined as 60 MG OMS daily for one week Macpherson - REMS strategy for Abstral - good preview for other opioids in future. Prescriber are specially certified - Adoption rate? Macpherson - Abstral REMS the pharmacist and wholeseller also has to be specially certified. Good luck with getting all 3 in your town Macpherson - FDA def of opioid tolerant - 60mg morphine, 24mcg fent patch, 30mg oxycodone, or 8mg hydromorphone per day Macpherson - BuTrans Transdermal buprenorphine - patch worn for 7 days, need to titrate patient down before starting Macpherson - Primary care providers have warm/fuzzy feeling towards transdermal systems -"Totally agree, but variable understanding' Macpherson - Nuedexta (Dextromethorphan/Quinidine) for uncontrolled laughing/crying in multiple neurological diseases #ALS #MS Macpherson - Acetaminophen IV (Ofirmev) - Finally I have wanted to have this so many times Macpherson - OxyContin Reformulation-60 tab AWP $375, insoluable in alcohol, forms viscous gel with water, some pts say not effective Macpherson - Cryostat - Most important palliative care therapy I am talking about - cold pack for hemorrhoid relief Macpherson Palliative related med Pipeline Ereska, Fentora Long Acting, Posidur, Rylomine 'get used to these names'
  • 3. "Art is about arresting life and making it available for contemplation" - Bertman "Death is about continuing bonds of attachments not severing them" - Bertman My favorite quote from Bertman (so far) "We are Body and biography" Religion is for people afraid of going to hell and spirituality is for those who have been there.- #quote from anon patient Humor is such a healing modality. We meaning making creatures and art at its best remind us of the contradictions that plague us all RT @GriefHealing: "Religion is for people afraid of going to hell and spirituality is for those who have been there" -R. G. Ingersoll Every patient invites the doctor to combine the role of the priest the philosopher the poet the lover - Anatole Brovard from Bertman ng @ctsinclair Quotation also attributed to Dr. Abraham J. Twerski, Deepak Chopra and AA ~ so who knows?! :o) "That which is to provide light must endure burning" - Victor Frankl - Great #quote from Showalter Why didn't you tell the taxi driver what you do (#hospice)? You had 40 minutes and you paid them $50' - Showalter @DrSES Russell - cases made for anyone on the liver transplant waiting list is #hospice eligible since high mortality. Make sure goals align. Russell - Adv age, anorexia were stronger predictors of survival than current hospice guideliens for #dementia Russell - "We set up failure when we are overly optimistic with prognostication" agreed Russell-How do we meet the patients need in prognositcation? Know the data/tools; know the bias, know the uncertainty Russell - Avoid 'Truth Dumping' on patients. It is not communciation. #epatient The @AA just announced they will be moving forward with the #Hospice Medical Directors Certification Pathway, ready by 2013 RT @equijada: Whidden- topical preps: EMLA - no, MS - yes, ibuprofen - no, lidocaine - yes. -> for wound pain; "dermafil best of all New paper Wygart on Childhood Sexual Abuse (CSA) in Pallaitive Care: 1 in 3 women and 1 in 6 men have had CSA Only one study to date looking at CSA in #palliative care/advanced #cancer settings Wygart - CSA impacts adherence to medical treatment, increased co-morbidities. Exacerbated by decline in physical/cognitive fxn CSA may be revealed by another family member and not the patient. - Wygart CSA survivors may repress, history of victim blaming/shaming, no safe place to report; Health care staff not sure how to respond. Comfort care module are exercises based on PALS (ped adv life support modules) - mult scenarios - pain, dyspnea. delivering bad news Now up Dr. Gordon Wood from University of Pittsburgh on "CODE: Chronic Opioid Documentation Evaluation" innovative teaching Now up Dr. Susan Glod from @PennStHershey on 'Experiencing Loss Through Patients Eyes.' Glod describes the 'Grim Reaper' exercise to help medical students recognize loss. 419 million media impressions for the Early #Palliative Care in Lung #Cancer study published in @NEJM - holy cow! 79% rec'd prognostic info from docs, only 47% of families partially used that info to help with dec making Survival Graph with Pneumonia in patients with advanced #dementia (no real diff for oral, IV, or intramuscula http://twitpic.com/41ih7m Graph of medical decisions before and after video assisted advanced care planning #HaveTheTalk http://twitpic.com/41ilqo Videos are not replacements for provide-patient discussion. They are a supplement - Anderson Media training boot camp @AA: Stay on message. Avoid jargon. Use plain language. Be confident. RT @drpippa: link for info on Volandes ACP videos - www.acpdecisions.org cc @DrJESimon Induced/Therapeutic Hypothermia for patients after cardiac arrest first published in 2002. 55% v 39% favorable neuro outcome NNT 6 # Hypothermia may decrease the clearance of sedatives by effects on P450, decreased distribution volume - Chen RT @suzanakm: Advice from Foley to Chochinov: just put in article physicians should just not be jerks-lessons from Osler #epatient # "The secret of the care of the patient is caring for the patient," - Francis Peabody Harvard University 1921 via @DianeEMeier "We are not the audience; no public engagement, no policy change." - @DianeEMeier Conflict about use of term 'medical torture' when suffering is not addressed in medicine - 'i dont like it myself, politics of fear' So glad that @DianeEMeier made a strong ask to this audience to engage online and in Social media. Submit public comments when asked - they are taken extremely seriously in Washington. Dont delete them like we all do - @DianeEMeier "Tell me your story" the four most important words in the English language - Block via Conway RT @renee_berry: "This is our moment & we need to grab it" @DianeEMeier RT @Doctor_V: Dayyyy-am, these palliative folks are social. "Yes we are! We do like to communicate after all." Prelim Twitter #'s from @AA conf- 300+users, 2000+ tweets, 300k+ accts reached, @ctsinclair "thanks from those of us stuck at home RT @dwensel: FourSeasons census of 250 with 5.5 FTEs and bill about 90% of FTF visits. 'Wow'